2006 Study ssessing: "Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. RESULTS: Mothers and fathers of children with DD reported high levels of parenting stress, with 84% of mothers' and 67% of fathers' scores falling within the clinical range. Parents of children with DD consistently reported higher levels of parenting stress, weaker SOC, and, for mothers and parents in 2-parent families, poorer health than parents of children without DD. Within families, mothers of children with DD reported poorer health, higher levels of parenting stress, and weaker SOC than their partners. There were no significant differences in reported health, parenting stress, or SOC between parents of children without DD.
2008 Pub Med Abstract assessing Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Study to explore the relation between aspects of parental distress in the parenting role and the child's limitations in functional skills and the child's behavioural difficulties, in parents of children with CP.
The California Evidence-Based Clearninghouse for child welfare - Screening and Assessment Tools for child welfare - Parenting Stress Index (PSI) and Parenting Stress Index-Short Form
PubMed Abstract of Arizona Study assessing Resilience and the course of daily parenting stress in families of young children with intellectual disabilities
Study Abstract: Based on a qualitative research project guided by grounded theory methodology, this article describes parents' participation in home therapy programs recommended by physical and occupational therapists. The study involved in-depth interviews with 8 parents and 4 therapists of children with cerebral palsy. The parents reported that in the initial stages of adjustment to the diagnosis, they were typically overwhelmed by their situation and unable to participate in providing activities at home for their child
NACD provides neurodevelopmental evaluations and individualized programs for children and adults, updated on a quarterly basis. As a family-centered organization. Stresses parent training and parent implementation of the program. Eclectic organization, gathering and utilizing the newest strategies that yield success and incorporating them into programs custom-designed for each client. Support provided to families through video reviews, e-mail and telephone sessions. Chapters can be found across the United States.
PubMed Abstract 2006 study, Boston college, MA, examines the contribution of the marital relationship to the well being of both mothers and fathers of children with developmental disabilities.
PubMed Abstract of Arizona State University Sutdy: Mothers and Fathers Together: Contrast in Parenting Across Preschool to EarlySchool Age in Children with Developmental Disabilities
PubMed Abstract of study by Pediatric Clinic, Mersin University School of Medicine Research and Administration Hospital, Turkey - Difficulties experienced by families with disabled children
CONCLUSION of 2007 study:: According to Antonovsky's concept, the SOC level is established in adulthood and it is relatively stable. These results showed that taking care of a child with CP is a potential source of chronic burden, which may cause a SOC level weakness.
PEDIATRICS - Official Journal of the American Academy of Pediatrics Article Abstract: The Health and Well-Being of Caregivers of children with Cerebral Palsy - 2005 Canadian study
PubMed Abstract of N. Ireland Study, School of Nursing, assessign the impact on mothers of bringing up a child with intellectual disabilities: a cross-cultural study